A new patient-led community for people living with Wilson disease, and the families who love them. Plain language. Real stories. No corporate noise.
We're a small editorial team — patients, carers, and one stubborn nutrition scientist — building the resource we wish someone had handed us on the day of diagnosis.
What you'll find here when we open: lived-experience stories, low-copper recipes that actually taste like dinner, a Canadian directory of clinicians, plain-language explanations of the science behind ATP7B, and a slow newsletter you'll genuinely want to read.
Not patient advice. Not a substitute for your hepatologist. Just companionship for the road.
No spam. We'll write once when we open and once a month after.