Acknowledgments

This site exists because of many people who gave their time, expertise, and trust.

To Wilson disease patients and their families

To every patient who has shared their journey with us — in private messages, in patient forums, in clinical letters they let us read — thank you. The questions on this site are your questions. The answers are written in the hope that the next person to face them will not have to face them alone.

To the clinicians who teach us

To the hepatologists, neurologists, geneticists, and metabolic-medicine specialists whose published work we draw on — you are the bedrock of every answer here. Where we have been able to translate your science into something a patient can act on, the credit is yours; any errors are ours.

To the volunteers

A small group of patients, family members, and health-science volunteers reads every draft, flags every confusion, and pushes us to be both more accurate and more human. They prefer to remain unnamed. Their fingerprints are on every page.

To the rare-disease community

To the Wilson Disease Association, to EuroWilson, to patient-led groups in China, India, and across Latin America — your decades of advocacy made it possible for someone like me to be diagnosed at all, and made it possible for medication to come back into production when it nearly disappeared. We stand on your shoulders.

To my family

You know what you mean. You will see your handwriting on every page of this site for as long as it exists.

— Wendy and the founding team